This web site supports the Peripheral Neuropathy
Support Group of the DC Metro Area, serving PN patients and their families and friends throughout the Washington DC Region.
At the current time, we are the only such group in the DC area, with some people traveling quite a distance. One of our goals is to help other groups form so they can be closer to their participants. In June we heard from someone thinking about starting one in the Baltimore Veterans Association hospital. We offered to help them. The Foundation for Peripheral Neuropathy has some "how-to" material on how to set one up.
Our Last Meeting: 2018-June-2
Want to see what we've been doing? Take a look at our Details Page
Things are stirring: I have referred to PN as "being the least-known, wide-spread disease" That's not good. The Foundation for Peripheral Neuropathy (FPN) has gathered together some folks in an effort to hack away at "The Awareness Problem". Especially Congressional Awareness or lack thereof. Plus some other things. We talked about it some at the July 2017 Pot Luck (Ya Should a Been There!) and will talk more at our Saturday meetings.
Next Meetings - July? Aug 4th! Sept 8!
There are some PN-related Clinical Trials on-going (or ready to start) that need volunteers. A few close by but most in Baltimore <PDF>
Excel-compatible text file has details on 56 currently open nation-wide clinical trials (browser should prompt you for program to use to view it) <PDF>
Last updated Aug 2016. [ I know, shameful :-( ]
We want to have useful blog posts
But, so far, we have only done a few to test the mechanics. Anyone want to volunteer to write a Blog? If you join as a member, you can add comments -- but we need interesting posts!.