This web site supports the Peripheral Neuropathy
Support Group of the DC Metro Area. Our goal is to help PN patients and
their families and friends throughout the Washington DC Region.
(last update: 12/18/2018)
A Support Group Near You?
At the current time, we are the only such group in the DC area, with some people traveling quite a distance. There are hundreds of thousands of PN patients in the DC area, with a like number of caregivers. Many others are impacted when, as symptoms intensify, patients cannot maintain their activities, including work.
One of our goals is to help other groups form, to be closer to their participants.
Our Last Meeting: 2018-Dec-1 Our Go-To Yoga/Tai-Chi angel, Cynthia Maltenfort, came to give us an inspiring lesson and introduction to Chair Yoga. Folks
in the above picture have a variety of physical problems and it really
helps to have a teacher who has used her knowledge and craft to deal
with her own physical challenges. Maybe it should be enough to be TOLD
to do something. For most of us, it usually isn't. We could all feel
Cynthia's "I've been there" conviction that this stuff really works.
We're a support group - empathy is an essential element. It doesn't hurt
to have a friendly and technically proficient teacher in the bargain.
And the mesmerizing sounds and incense at the end left us all in a
relaxed and joyful mood.
People with PN (as patient
or caregiver) have had to adapt. Use of the word "chair" in "chair
yoga" signals that there remain viable paths to wellness even in the
storm called Peripheral Neuropathy. This afternoon I will be attending
my first chair yoga class at our local studio.
Things are stirring: I have referred to PN as "being the least-known, wide-spread disease" That's not good. The Foundation for Peripheral Neuropathy (FPN) has gathered together some folks in an effort to hack away at "The Awareness Problem". Especially Congressional Awareness or lack thereof.
This is a link to the Clinical Trials portion of the Foundation for PN website. On that page is a link to the "Antidote" site that will
We want to have useful blog posts
But, so far, we have only done a few. Anyone want to volunteer to write a Blog? You can add comments -- but we need interesting posts!.