This web site supports the Peripheral Neuropathy
Support Group of the DC Metro Area. Our goal is to help PN patients and
their families and friends throughout the Washington DC Region.
(last update: 7/7/2019)
A Support Group Near You?
At the current time, we are the only such group in the DC area, with some people traveling quite a distance. There are hundreds of thousands of PN patients in the DC area, with a like number of caregivers. Many others are impacted when, as symptoms intensify, patients cannot maintain their activities, including work.
One of our goals is to help other groups form, to be closer to their participants.
Things are stirring: I have referred to PN as "being the least-known, wide-spread disease" That's not good. The Foundation for Peripheral Neuropathy (FPN) has gathered together some folks in an effort to hack away at "The Awareness Problem".
This Winter, the Foundation began a lobbying campaign to get the US Senate to "allow" the DOD to "consider" research proposals on PN. DOD has a research program on health that is separate from NIH. PN is not, and has never been, on the list of topics the DOD could even consider for funding! All the foundations and support groups had their members write messages to their Senators. Our lobbing group says those efforts were quite helpful. This effort is the kind of action that is needed to chip away at PN's persistent invisibility. We are watching to see if this ongoing effort bears fruit.
This is a link to the Clinical Trials portion of the Foundation for PN website. On that page is a link to the "Antidote" site that will
We want to have useful blog posts
But, so far, we have only done a few. Anyone want to volunteer to write a Blog? You can add comments -- but we need interesting posts!.